Thursday, October 13, 2011

Child Study Team...II

Hello all!

Today we had our second child study team appointment and the hearing test. We did very well with the hearing - no big surprise there... Miss What's that noise?

Delaney separated from me today and went in the room all by herself, I was very proud of her and yet my heart sank just a little. She is always very independent but this was like out of the box even for her.

We had a good day overall and I am still very positive that she will get into the program on her 3rd birthday. Daddy took our little princess for a ride tonight to hopefully help her get to sleep. they are still not back.... I am hoping...

night night!


Tuesday, October 11, 2011

Child Study Team

So today we had our first part of our child study team to transition from Early Intervention into school. We had our speech eval and social. I think Delaney represented herself accurately. It looks like she will get into the program. While we were there we played with a really cool Little People Playground and she really seemed to like it. I went right away to Toys R Us to see if we could find anything like that... of course, we came home with an Elmo! Don't ask! While we were in the store we only had 1 meltdown... I really need help with these.

The sensory thing... the 2 year old thing... the Mommy I want that thing... what do I do?


This is a really big week for us... Thursday more evals - will write tomorrow! Ciao all!

Ok Update to today...
I brought my older child, Andy to CCD tonight and while we were running in... he crashed into another child fell and skinned his knee - there were lots of tears - after some ice and a bandage - Andy decided to brave the class. All the while I was holding the previously sleeping Delaney. So now.. I decide to try and pick up a couple of things from the store. On the way to the store, guess who fell asleep again. This is probably because she is not sleeping well at night, had her evals this morning and didn't nap for a solid hour at any point during the day. I carried in my sleeping toddler into the store and she was so cuddly and calm.... then she woke up. She wanted a different cart than I had picked... ok no problem we will change to the more grown up I want to ride in the front almost standing seat... now I am trying to belt her in... and or course the ramping up is starting... nothing is making her happy right now. Belt on - belt off, still tired! Now the screaming starts... and I decide to try and redirect and maybe change the scenery... all the while the looks, oh how I love those looks. You know the ones from either very opinionated perfect moms or non-moms - definitely not Mommy's of a sensory child. So now we are in the back of the very large and hard to manage cart... and we decide that nothing is going to work. So I am trying to talk to her - calm her soothe her.. and the looks keep coming - I know if I pick her up to remove her from the cart and the store - she will go nuts.. but I have to do this. I put the 2 items back that we selected by the door - and I swooped my baby up. Still screaming and now .. hitting, kicking, pinching me -- the employee at the front of the store.. now thinks I am abducting my own child. Really? As I am walking to the car, trying to hold her as tightly as I can to protect both of us. Walking through a crowded parking lot and really not wanting to put her down with cars all around. I had to hold her safely. We get to the car, open the car and I put her in her car seat. Trying to not hurt her but get her in.... now I can feel it ramping up on me too. By the time I reach the drivers seat - I am sobbing like a toddler. I just can't control it. I am overwhelmed by my inability to comfort my child. I love her so much - I just want her to be happy and ok... moral of this story I think I should know that my sensory child can't go to the store, after not successfully napping all day and I should just know that by now!

I will shop the 24 hour Walmart at night now.. :-( after my hubby gets home.

I am just mentally drained, my heart actually hurts.. I hope that I can find some support soon from other sensory mommies.


Monday, October 10, 2011

Why can't we sleep

I think that people telling me all the time that I am not strict enough, I need to get on a schedule, just have no idea what my baby is all about. The very first time my Delaney was placed in my arms, I knew she was going to change my life forever. Being a first time Mommy to Andy for the past 5 years was the most amazing thing I had ever done. I thought I was pretty good at it. Then came our daughter. She really could never rest. Was it the formula? Why did she only like to sleep in the swing? All of this makes so much sense now.

I know for some of you reading this.. I am about to tell you a bunch of nonsense. My daughter has SPD - sensory processing disorder. This is a very real thing and I am now at 2 1/2 figuring out how to deal with this and be a good Mommy to her. I thought maybe posting a blog about my journey may help someone else earlier in the process or maybe I will be lucky enough to hear from other more experienced Mommy's that can offer advice and share success stories.

This is my opener. I will write something each and every day.
We have not been able to sleep. We can't fall asleep. The problem is that we stay up too late, finally fall asleep and then wake at 2 or 3 am very upset. Sometimes there are night terrors and the screaming is horrible. There are days when we don't nap all day and then fall asleep at 6 or 7 and sleep until 10 and then we are up until 2 am. I purchased a weighted blanket and she does not really like it. I am looking into a bed tent now - or changing her bed to a smaller bed - I think she doesn't feel secure enough... any ideas?

In need of sleep.....